https://www.podbean.com/media/share/pb-qn368-190ce9b

In this episode, I break down why advocacy isn’t just a buzzword. It’s a lifeline for those of us living with rare diseases and chronic illness. I talk about how real change doesn’t only come from big moments on Capitol Hill, it starts in the everyday: telling your story, joining forces with patient groups, challenging broken systems. 

I get real about how speaking up, educating others, and writing to lawmakers can actually move the needle. Advocacy isn’t about being loud, it’s about being relentless, informed, and united. If you’ve ever wondered whether your voice matters, this episode is for you. Because it absolutely does.